Monday, November 30, 2009

Late update!

On Friday we received the results of Kael’s CF test!

They were negative!!
I was so relieved!

Kael is doing much better!
His lungs are clear
For the first time in months
His ear infections are gone
And he is getting back on
Track with eating and sleeping
He lost 3 pound with his last bout
Of pneumonia
so we are working on weight gain

Dr.W is monitoring him very closely
And he will be having monthly
Chest x-ray
hopefully this will revel the
Cause of his chronic pneumonia

we are currently weaning kael
off his antibiotic and nebulizer treatment

For now we wait
and pray for better health

Tuesday, November 24, 2009

The Day

Today was
the day
Today was the day Kael
had his
Cystic Fibrosis test

It took three tries
to collect enough sweat
we spent three hours
in the hospital.

The first attempt was at 10:30am
Once the collector
was in place around his arm
we were sent to the cafeteria
to get my baby running around
and that he did
he does that best
the first attempt
some sweat
was collected but not enough.

The second attempt was at 11:25am
once again we were sent to get
the little one running he
was tired
so not much running was done
we when to get the rest of the sweat we needed
and there was none
epic fail

The third attempt was at 12:35pm
Third times a charm
this time i bundled him up
in his buggy
and walk around the hospital
Fortunately there was enough
sweat to finish the test.

So its been done and now
we wait......
till Friday.......

Friday, November 20, 2009

Cystic Fibrosis

On Tuesday my son will have a sweat test to determine if he has CF.

At this moment the doctor is just doing it as a measure of ruling things out.

Cystic fibrosis (CF) is a chronic, progressive and genetic (inherited) disease of the body's exocrine (mucus producing) glands.

Symptoms of Cystic Fibrosis

The pattern of development of CF and the severity of its symptoms varies among individuals. The disease is sometimes obvious soon after birth, but some cases of CF, they are not detected for months (in infancy) or years (in childhood).

In babies and infants, the symptoms of CF are:

  • persistent diarrhea
  • bulky, foul smelling and greasy stools
  • pale stools
  • frequent wheezing or pneumonia
  • chronic cough with thick mucus
  • salty-tasting skin
  • poor growth
  • blockage of the intestine (called meconium ileus)
  • abdominal swelling
  • gassiness
  • vomiting
  • dehydration

  • KAEL has 10 of the symptoms listed.
    Do this mean he has it
    well this is why it is going to be tested.

    For now i am trying not to freak out.
    but the test must be done.


    Thursday, November 19, 2009

    Take the Vow of Silence.

    I am taking the 24 hour silent pledge starting at midnight tonight, no facebook, texting, talking, twittering... nothing for 24 hours. Join with me in this revolution for the children that do not have a voice against child poverty

    n 1989, the world was introduced to a forum to give a voice to children around the world, The Convention on the Rights of the Child (CRC).

    The Convention outlines the basic human rights that children everywhere have.

    This November marks the twentieth anniversary of The Convention on the Rights of the Child, but after all this time we must ask ourselves, are the voices of children around the world being heard, are their rights being upheld?

    Today, over one billion children live in poverty. Hunger is only one of their challenges; exploitation, abuse and discrimination haunt them on a daily basis. Many live in remote areas of the world and have little or no education.

    They have no rights. They have no voice. On November 20, 2009, people around the world will remain silent for 24 hours in support of those who are unable to speak up themselves and in support of the CRC.

    Join the quiet revolution.
    Take the Vow of Silence.

    Tuesday, November 17, 2009


    Do you know a baby that was born too soon, too small, unable to suck, unable to breathe on his own? Premature birth is a health crisis that jeopardizes the lives and health of nearly half-million babies each year. It is the #1 killer of newborns and can lead to lifelong disabilities. Worse: the number has increased 31 percent since 1981. It can happen without warning and for no known reason. Until we have more answers, anyone’s baby, could be born too soon.

    Medical advances give even the tiniest babies a chance of survival, yet for many babies premature birth is still a life or death condition. It’s the #1 cause of death during the first month of life. And babies who survive face serious health challenges and risk lifelong disabilities.

    The rate of premature birth has never been higher. In half the cases, we simply don’t understand what went wrong. We need to fight for answers. And, ultimately, preventions.

    November 17 is dedicated to raising awareness of the crisis of premature birth. The March of Dimes invites bloggers like you to get involved.

    Saturday, November 14, 2009

    Arts and crafts

    Since my son is sick
    he slept the majority
    of the day
    so i took
    the opportunity
    to make this
    for him

    No i didn't
    make the letters
    but i did paint and glue
    them, yeah i m lame
    but my carpentry skills
    aren't the greatest
    and my son needs a
    mommy with all of her digits
    thank you,

    If your interested
    you can buy the
    letters here

    And to catch up on not
    blogging for like 2 weeks
    i will post pictures
    of the one and only

    Friday, November 13, 2009

    The most important day in history

    Well maybe not!
    But today friday the 13 th
    is the most important day in my history.
    At 6:50pm
    17 months ago
    this happened

    Yes Friday June 13th
    was the best day of my life
    HAPPY 17 Months BABY!!!

    Where does time go?

    I love this kid so much!!!!!!!!!

    Monday, November 2, 2009


    Daddy and kael!

    Kayden very excited running to is grandpa!


    Waiting for candy!

    First official door!

    Kael and Kayden! A dragon and a lion!

    A Dragon in a car seat!

    A Dragons Roar!

    Kaels pneumonia cleared up just in time for him to enjoy his second Halloween. It was his first time trick or treating and he loved it. He got lots of candy none of which he can eat but he's a social boy and loved the idea of seeing/meeting new people!